I don't throw pity-parties and I force myself to go to work so "it can't be that bad".
I'm currently in my 20s and was born with skeletal defects involving my hips, legs and feet. I've had numerous surgeries to correct and preserve the joints but things have progressed to the point where I'm in constant pain and have trouble doing the simplest of tasks. Oh, the things I used to take for granted...
Anyways, I am a positive person and I want to be 'normal' so I try not to complain or wallow in self-pity and I force myself to go to work. I must take a daily regiment of prescription anti-inflammatories and painkillers just to function on a basic level.
In order to keep sane, now here's where my rant comes in:
1) my insurance company gives me flack about my medication being 'too expensive' and asks if I can find a cheaper drug. Believe me, it took a lot of trial and error to find a combination that semi-works so I'm not about to give this up. Obviously, they don't know what real chronic pain is.
2) people get on my case for not visiting enough anymore and why can't I come see them. Dudes, I'M CRIPPLED. I hurt all the time. My meds make me sick and drowsy. I don't travel well these days. If it's a big deal, feel free to come visit at my house.
3)because I work 'it can't be that bad'. Well guess what? It is. Sure, I can drug up and make it through an 8 hour day but what you don't see is the discomfort I'm in AFTER working those 8 hours.
4)it's months and months to be able to get to see a doctor about my condition. So what happens in the meantime? Oh here, take all these nasty drugs that your insurance doesn't want to cover and be miserable. I'm sure it's not that bad.
5)"My mother/father/uncle/random old person had hip surgery and they were all better in a few months so how come you're not better yet?" Well,I must be faking it then right? It seems every second person is an orthopedic specialist just dying to give you their opinion.
6) my able-bodied, unemployed, welfare-sponging sibling has all his medical expenses covered, can see a doctor whenever he wants and gets paid to stay home but I keep getting roadblock after roadblock thrown in my face when I actually go to work, pay taxes, and try to be a productive member of society.
7)"you look fine to me". Oh wow! You have X-ray vision! Cool!
Ugh! Sorry about the pessimistic rant but boy do I feel better now! :)
Since you're interested in disability related products, you may also be interested in the following products recommended by our affiliate partners, at no extra cost to you. Just click on any product, and you'll be taken to the merchant for that product.
Note that the recommendations are auto-generated, so may not match automatically. But you can also do a search for any product you like just below the product options. Hope that helps!