My son was born and started having seizures after birth. He was diagnosed as having a stroke at some stage inutero which was causing the seizures.
The cause of the stroke was never discovered even after numerous expensive medical tests. Callum is now 17 months old and since he was diagnosed I have lived in a state of constant fear. Fear of the future, uncertain as to how extensive the effects would be.
My rant / vent is that there is no one who can understand the anguish of a mom who has to face a future of uncertainty for her child.
Friends and family seem to move on and even forget. Perhaps I imagine that they look at me in a puzzled manner when I dare to express my anxiety. I feel embarrassed sometimes for mentioning it, because I've discovered that in general people do not want to be faced with something to which there is no answer - especially if it is to do with a baby.
I hate that the children's stroke outcome predictions are basically "wait and see". Some babies recover beautifully, others have varying degrees of disabilities. No one can say how the brain will heal but for me it's as frustrating as it is hopeful.
I love my little boy, he's accomplished great things in his little life and I'm proud of him. I just wish I knew where we were headed - I have yet to relax and enjoy the journey cause I want the best destination possible.
Since you're interested in disability related products, you may also be interested in the following products recommended by our affiliate partners, at no extra cost to you. Just click on any product, and you'll be taken to the merchant for that product.
Note that the recommendations are auto-generated, so may not match automatically. But you can also do a search for any product you like just below the product options. Hope that helps!
Comments are moderated - by a human who also lives offline. Please allow up to 48 hours before comments are displayed.
Since you're interested in special needs, you may also find these special needs products of interest to you as well. This product selection is auto-generated by our affiliate partners and recommended for visitors to this site.
Just click on any product that interests you and you'll be taken to the merchant for that product. Don't worry, we'll still be here waiting for you when you're done.
If I find good products that I think offer value and would be of interest to my site visitors, I occasionally will provide my visitors with an affiliate link. Some (but not all) of the links on this site are to affiliate referrals. At no cost to you, an affiliate may pay me a small referral fee, which goes towards the cost and maintenance of this site. Any recommendation or referral I offer my visitors is independent of the existence of a possible affiliate fee, and my primary goal is to provide my visitors with useful information. Additionally, some affiliate links (and advertising) is auto-generated, based on site content and visitor preferences. If you have any questions about this, please contact me.