My son has a variety of illnesses, brain and spine related. He also has something going on mentally, we don't know what as of yet.
The doctors say they don't want to diagnose him so young, but we need something. Yesterday we were at our state capitol which was a fun event for my other three children. My son with special needs at one point broke down at first he just was trying to hit someone. So I chose to walk away from the group tour. Only this made it worse.
He started yelling, then as we kept walking he started crying, screaming, and slamming his head against his stroller. I tried to comfort him by talking to him and he grabbed a huge chunk of my hair and yanked. The whole handful of hair came out.
For some reason I didn't even feel the pain as I stared down at my hair in his hand. I walked by a group there was a professional photographer which was trying to get a realistic shot and we were trapped from moving further.
They looked at me as if I had lost it and like can't you control your son.
I don't know how to explain these situations, but just walked by with my head down.
Another time I took my son to church, I got a call he had hit another boy, the problem was he threw a truck it hit the boy in the ear and he had a pretty bad cut.
My well meaning friends told me I shouldn't tell the workers about my son's conditions this happens to others. Ok that might work with your normal child, but mine could have complete melt down and they need to know what could happen.
People just don't understand when I tell them or when they see my son.
The worst part is some doctors keep saying there is more wrong, but the ones who could help just blame it on his brain condition. It's a never ending cycle. It's so stressful when he behaves this way and it seems to be getting worse.
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